Kaden and I arrived home at 9:30 pm last night. The lights of Delta were awesome to see coming home! It was a long day of going back and forth with Dr's and everybody else in the hospital if we were coming home or not. Finally, we got the green light at 7:00 pm. His chest x-ray that they did Tuesday night and then the one they did Wednesday afternoon had not changed, so that is why they let us come home. If it had shown 1 oz more of fluid in his lungs, we would still be there.
Kaden still has fluid but we are going to do an 8 week course of antibiotics to try and get it out of there. He has to do lots of deep breathing exercises and blow into his "sucky" thing. Getting his strength back will also help him tremendously. He is really glad to be home. Kaden has to have his antibiotics at 8:00 am and 8:00 pm, so Home Health Care met us here last night and then she came this morning and will be here again tonight to train us so we can do it ourselves and then will just come out on Mondays to change the dressing on the PICC line and where they put the chest tubes in. Primary Children's also want blood work done every Monday, so she is going to do that also, since I refuse to take Kaden into the Dr's office or hospital here with all the other sick people of the town.
We will probably keep him home from school for a few weeks and then they told him he could go back when he felt up to it. So that means he will get to do all his school work here. He was worried about having to repeat 9th grade, but I told him he would be fine.
He can have visitors, but please don't come out if you are sick! We really don't want to end up back at Primary Children's!
Anyway, we are glad to be back home and even more thankful that Kaden is doing well. Tell your kids and family you love them everyday, you never know what the day will bring.
Thanks, more update later!
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